This was left as a comment but because it’s important to all of us I thought it would be better as a post.
Novi, Michigan – October 27th, 2007 conference:
Survivors’ Debate: The Past Decade in Ovarian Cancer
Ovarian cancer survivors, Carolyn Benivegna (U.S.) and Sandi Pniauskas (Canada), announce the first ever Ovarian Cancer Survivors Debate. The two conferences are survivor-led and survivor-organized with debate and discussion surrounding the multitude of issues – the past and the present. Open and lively dialogue will be encouraged. Funding for these events has been primarily through the ovarian cancer surivors.
WHO SHOULD ATTEND:
All cancer survivors/caregivers, healthcare professionals, researchers, pharmacists and the general public are encouraged to attend and participate.
#1: Sheraton Hotel, Novi, MI Sat. October 27th, 2007
#2: Metropolitan Hotel, Toronto, ON Sat. November 3rd, 2007
Time: 10:00 am – 12:30 pm
No cost to attend
Ovarian cancer has the highest mortality rate of all gynecologic cancers. Ovarian cancer has no early detection test. The debate and ensuing open forum public discussions will include the specifics of disease-related issues including genetics, access to care and communications. Carolyn Benivegna is a nine year ovarian cancer survivor, a BRCA1 carrier and Founder/Board Member of OCAG-GC. Sandi Pniauskas is an eight ovarian cancer survivor with a genetic predisposition to Lynch Syndrome/Hereditary NonPolyposis Colorectal Cancer and a member of the Cochrane Collaboration. Ovarian cancer survivors Annamarie DeCarlo and Dr. Yi Pan, MD, PhD will co-moderate both events. Bridget Capo (R.N.) and Pamela J. West (R.N.) will provide support and collaborate with Benivegna and Pniauskas in formal publication of the event proceedings.
“Our community is very pleased to offer this exciting open public forum without cost to participants and we encourage active dialogue. We value our professional and family caregivers, but have seen the need, over years, for our community of cancer patients to have open discussions on the real issues that affect their lives. Today, and for the future. We need to appreciate the past, so that we may effectively bring attention to the sufferings experienced in our community. Most importantly we need to escalate change.” Benivegna/Pniauskas
Posted by Sandi Pniauskas to Birth Control Buzz Blog at 07 September, 2007 17:46
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